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15 September 2011

Sarna, wigs and lanterns

I eventually escaped from Alder Hey on Friday and I was really pleased to be back home as I had a Mabel lantern to make. I started off well but then didn't do any more until late last night, but it's nearly done now. I'm in Liverpool again now but I'll finish the legs on Friday (it has only got 2 legs so far)! Every year, our town Ulverston, has a lantern procession through the cobbled streets and loads of people make lanterns from willow and once it's dark we light them and do the walk. This year the theme is Vikings but we're ignoring that and doing a mix of bone marrow awareness lanterns and bucket list lanterns. We have cinema ticket lanterns, sharks, a big camera, my Emma Bridgewater mug and of course Mabel. They are all things from my bucket list! I can't wait because I've always been in hospital and I've missed the last 3 years. I will put some photos on here next week. We had Merseyside Police in the hospital today telling us all how to be safe. We can remember someone from the dog unit sent us a message saying that I could go and see them training and meet some of the dogs. But then we couldn't find the email and Mum said we'd look stupid just randomly phoning police stations so I never got to go. Anyway, because they were there today, they gave us all the details again and now I'm hoping to go one day. I also went to the Andrew Collinge salon in Liverpool which was amazing. Not for my own hair, I'm getting a real hair wig! I had a really nice time and I picked a nice long style in quite a warm reddish brown. I can't wait for it to come cos then I get to go back and they will cut and style it on my head! I think that mum is going to try and book an appointment at the same time. My skin has been really horrid for years because ive had so much treatment. After i started my blog, an American company called ISClinical sent me a box of creams and things. The serum is making my scars fade and get softer and I love the body complex as well, ive decided that it smells happy!. One of the things you get with Hodgkin's is itching and it's not as bad as it used to be but it does still annoy me. Well we've found something for that as well and it works. It's called Sarna and my mums American friend gave it to me try and now I'm in love with it. It makes it all cold and tingly! I have a Lush bath and then I put Sarna on and it feels really nice. A few people have been busy nominating me for an award thing and they let us know that I've been shortlisted and we get to go to London for the night, as long as I'm well enough. What is really nice, is that Milly has been nominated too, for all her fundraising and charity things. But it is all down to the votes we get. So if you would like to vote for me and Milly, please do. I'm looking forward to the night but it feels a bit like school was when they picked two teams and you were terrified of been the last one picked. The link is but I still don't know how to put a proper link on here. Will ask mum tomorrow. I'm in the second category and Milly is in the last one. I had three tweets today from people who have just signed up to be a BM donor. Hearing that makes me really happy, thank you and keep spreading the word and posting on Twitter and Facebook for me. I'll put pictures up when I'm home on my proper computer. I don't think I can do it on this.


  1. Hi Alice! If you just type http:// before the web address, it should automatically convert to a real link. :) It's just as easy for people to cut and paste it, though, so no worries! Hope you are feeling well! Good luck in the contest!

  2. Hi Alice!!! I am so glad to see you so happy and full of energy!! I will vote on you guys right now :)
    Alice, I don't know how to send you a photo (the one with me, your mug and my dog), please post here or in the facebook how to do it, ok?

  3. If you will highlight the link and right click it will ask if you want to open the link.

    I am following you from America and I am amazed at your inner strength. Bless you and your family!

  4. just voted for you from america :)

  5. Hi dear...i've voted for u and milly :) ... love u both...

  6. Dear, sweet Alice ~ You are in my prayers ~ I love all of your posts ~ they are such a delight to read, my dear friend!! Much love ~ (the other) Alice

  7. Hi Alice, Good to hear that you are back home. I've watched Lantern Festivals only in TV and in the movie "Tangled". I believe these festivals should also be considered as a platform to raise public awareness to support the people who are suffering. You are doing a right thing by carrying out a bone marrow awareness campaign during this event and I really appreciate it.
    So, you are not going to miss this festival this time after three years :), I wish you to have a good time. Be safe and take care of your mom and Milly as well. I had already cast my vote for you in Inspiration awards website, I hope a lot of people reading this blog will do the same. I am (like a lot of others here!) eagerly waiting for the photos of Lantern Festival that you said you'll upload in your blog.
    Take care and keep posting.

  8. For the itching have you ever tried E45 itch cream - it is magic!

  9. I just voted you and Milly, keep on going like you do, you are so brave!
    A big hug

  10. Just voted for you and Milly, best of luck and hope you both win xxx

  11. Hi Alice,
    Want to hear a funny thing? "Sarna" in portuguese means "scabies".
    I have already registered as a bone marrow donor in Brazil, and I use to broadcast the calls for new registers here in my country.
    I wish you all the best. Have fun!

  12. Hi Alice! I hope you are doing well. I'm portuguese and I'm 15 years too. You're so strong and beautiful! Thanks for making look at my life. My mum had cancer a few years ago. I will vote for you and Milly right now. You are in my prayers every day. Kisses and good bless you.

  13. Hi Alice! I hope you are doing well. I'm portuguese and I'm 15 years too. You're so strong and beautiful! Thanks for making look at my life. My mum had cancer a few years ago. I will vote for you and Milly right now. You are in my prayers every day. Kisses and good bless you.

  14. Good luck to you both you and Milly Alice, I do hope you both get the awards you so greatly deserve. I've just cast my vote and now I'm keeping my fingers crossed for you.

    Big hugs to you all as always

  15. Hi alice , my name is bianca and i'm brazilian
    I love you blog , and you are beatiful <3

  16. hey alice,

    just wondered if you know that the American soap opera The Young And The Restless is currently doing a story where a girl needs a bone marrow transplant, and all the people in her town are getting tested. Like, every single character, and then at the end of the episodes they're encouraging all the people watching to join a bone marrow registry.

    Thought you might find that interesting!


  17. hi alice just voted for you n milly hope both of you win this thing by a landslide goodluck.take care much huggs

  18. Hey Alice-just voted for you and Millie. I had an autologous bone marrow transplant 20 years ago for HD-it is wonderful how you are inspiring people to sign up. Keep being strong

  19. I love the idea of a Mabel Lantern. The festival sounds wonderful. Wish I could see it. Might you take a video?
    Hope you are getting stronger each day.
    xxxxoooo from NY and Tracey